Actors

This index covers entities with institutional identity: research institutes, multi-institution research collaborations, funded programmes, biobanks, and research facilities. Entities whose primary role is governing, coordinating, or setting norms belong in Governance. Digital systems and data archives belong in Resources.

Research institutes

• Allen Institute for Brain Science co-founded NWB and produces open brain atlases and electrophysiology datasets archived on DANDI Archive.
• AP-HP (Assistance Publique – Hôpitaux de Paris) operates EDS AP-HP and partners with Health Data Hub on national health data access.
• BrainLat (Latin American Brain Health Institute) is a dementia and brain-health institute producing the open multimodal BrainLat dataset, in partnership with ReDLat.
• CEA (Commissariat à l’Énergie Atomique et aux Énergies Alternatives) is a French national research organisation operating NeuroSpin and contributing to CATI.
• Center for Open Neuroscience produces DataLad, co-leads the DANDI Archive, and maintains NeuroDebian.
• Child Mind Institute is a New York non-profit operating INDI and the Healthy Brain Network, releasing open multimodal neuroimaging and EEG datasets on NITRC and OpenNeuro.
• CNEURO (Centro de Neurociencias de Cuba) coordinates the open Cuban Human Brain Mapping Project, distributed via CONP.
• Donders Institute (Radboud University) is a European open-data pioneer with a mandatory data sharing policy, home of the FieldTrip MEG/EEG toolbox.
• DZNE (German Centre for Neurodegenerative Diseases) is a Helmholtz Association institute contributing to EBRAINS and JPND.
• EMBL (European Molecular Biology Laboratory) is the European intergovernmental research organisation whose EMBL-EBI operates EGA, ENA, EVA, IDR, and the BioImage Archive.
• Institut Curie is a French cancer research centre with activity in molecular and cellular biology and French genomics infrastructure.
• Institut de Myologie is a French neuromuscular disease research and clinical institute, partner of Paris Brain Institute and AP-HP.
• Institut Pasteur is a French biomedical research institute with activity in neuroscience, genomics, and infectious disease.
• INM Jülich (Institut für Neurowissenschaften und Medizin) is a Helmholtz Association neuroscience institute, co-producer of DataLad and contributor to EBRAINS.
• MNI (Montreal Neurological Institute-Hospital) is a Canadian open neuroscience institute, home to LORIS, TOSI, C-BIG, and a founding node of CONP.
• MPI CBS (Max Planck Institute for Human Cognitive and Brain Sciences) produces open neuroimaging datasets including the MPI-Leipzig Mind-Brain-Body dataset on OpenNeuro.
• Mount Sinai Neuroscience (Friedman Brain Institute) is the lead site for the CommonMind Consortium and PsychENCODE and a contributor to Synapse AMP-AD.
• Ontario Brain Institute operates the FAIR neuroinformatics platform Brain-CODE and is a founding sponsor of CONP.
• Paris Brain Institute is a French non-profit neuroscience institute at Pitié-Salpêtrière, combining fundamental research, clinical neurology, and translational science.
• deCODE genetics is an Icelandic genomics research institute releasing GWAS summary statistics for neurological and psychiatric phenotypes.
• NRU Copenhagen (Neurobiology Research Unit) is the originating institution of Public-nEUro and the OpenNeuroPET initiative.
• RIKEN CBS (RIKEN Center for Brain Science) is a Japanese neuroscience institute, lead institution for Brain-MINDS.
• Sorbonne Universite (Sorbonne Université) is a French research university hosting Paris Brain Institute.
• The Florey participates in ENIGMA-Epilepsy and operates within the ARDC ecosystem.
• TOSI (Tanenbaum Open Science Institute) is the open science institute at MNI, operating C-BIG and coordinating the Canadian Open Science Alliance.
• UK DRI (UK Dementia Research Institute) is a multi-site UK research institute with a FAIR-aligned data sharing policy.
• Sainsbury Wellcome Centre is a UCL systems neuroscience institute, home of the BrainGlobe Initiative for computational neuroanatomy.
• SciLifeLab (Science for Life Laboratory) is Sweden’s national life science infrastructure and ELIXIR-SE node, producing the Human Protein Atlas.
• SIB (Swiss Institute of Bioinformatics) is Switzerland’s national bioinformatics infrastructure and ELIXIR-CH node.
• VIB (Flanders Institute for Biotechnology) is a Flemish life sciences research institute and ELIXIR-BE node, co-founder of Mission Lucidity and NERF.
• Wellcome Sanger Institute is a UK genomics institute with a rapid-release open data policy, depositing to EGA, ENA, EVA, and CELLxGENE.
• Human Protein Atlas is a Swedish open-access brain and proteome atlas programme within SciLifeLab, an ELIXIR Core Data Resource.
• Human Technopole is an Italian life sciences research institute with a Neurogenomics Research Centre depositing single-cell brain data to CELLxGENE.
• KISN (Kavli Institute for Systems Neuroscience) is a Norwegian electrophysiology institute whose open grid cell datasets are archived on DANDI Archive, the hub of NORBRAIN.
• Netherlands Institute for Neuroscience is the Dutch national neuroscience institute, operating the Netherlands Brain Bank and co-running the Spinoza Centre for Neuroimaging.
• NERF (Neuro-Electronics Research Flanders) is a Belgian electrophysiology research centre, co-developer of the Neuropixels probe series with data on DANDI Archive.
• Open Brain Institute is the Swiss non-profit successor to the EPFL Blue Brain Project, providing open Virtual Labs for simulation neuroscience using NeuroML.
• Vrije Universiteit Amsterdam operates a university-wide Open Science Programme committing to open access and FAIR research data management.

Consortia and cohort projects

• ABCD Study (Adolescent Brain Cognitive Development Study) is a longitudinal multisite study of child brain development, with data distributed via NIMH Data Archive and dbGaP.
• ADNI (Alzheimer’s Disease Neuroimaging Initiative) is a multisite open clinical neuroimaging cohort covering the Alzheimer’s disease spectrum, accessible via LONI IDA.
• BICAN (BRAIN Initiative Cell Atlas Network) is an NIH-funded programme building a mammalian brain cell atlas, with data in NeMO Archive and CELLxGENE.
• Brain-MINDS (Brain Mapping by Integrated Neurotechnologies for Disease Studies) is the Japanese brain mapping programme producing an open marmoset atlas, with its SRPBS dataset on OpenNeuro.
• Cam-CAN (Cambridge Centre for Ageing and Neuroscience) is an open lifespan MRI and MEG dataset of healthy adults, available via OpenNeuro.
• CURE-ND is a European alliance of neurodegenerative disease research institutes (DZNE, Paris Brain Institute, Mission Lucidity, and UK DRI).
• DPUK (Dementias Platform UK) provides secure Trusted Research Environment access to longitudinal dementia cohort data, harmonised using OMOP CDM and linked via HDR UK.
• FinnGen is a Finnish public-private genomics consortium releasing GWAS summary statistics for disease endpoints including neurological and psychiatric.
• NORBRAIN (Norwegian Brain Initiative) is the national neuroscience infrastructure programme that established the EBRAINS Norway national node.
• ENIGMA Consortium (Enhancing Neuro Imaging Genetics through Meta-Analysis) conducts federated neuroimaging meta-analysis across working groups for neurological and psychiatric diseases.
• EPINOV (Improving EPilepsy surgery management and progNOsis using Virtual brain technology) was a French national trial testing personalised Virtual Epileptic Patient simulation, built on Human Brain Project methodology.
• foundingGIDE is an international project coordinated by Euro-BioImaging, building the foundations for a Global Image Data Ecosystem.
• Genome of Europe is a Horizon Europe programme building a pan-European reference genome cohort, coordinated through BBMRI-ERIC with data via EGA.
• Human Connectome Project produced a landmark open MRI dataset and developed the CIFTI surface-volume format.
• IBL (International Brain Laboratory) operates a fully open data and code model, with its Brain Wide Map dataset on DANDI Archive in NWB format.
• Lifelines is a three-generation Dutch population cohort and biobank, a founding partner of BBMRI-NL, with genomics data via EGA.
• Mission Lucidity is a Belgian neurotechnology research consortium focused on decoding neurodegenerative diseases.
• Monarch Initiative is an international consortium integrating gene, disease, and phenotype data across species, producing MONDO and uPheno and co-developing the HPO.
• Netherlands Brain Bank is an independent non-profit Dutch brain tissue biobank, distributing postmortem brain tissue and neuropathological records under an open access policy.
• NIH BRAIN Initiative is the primary US funder of open neuroscience data infrastructure, including DANDI Archive and the NWB data sharing mandate.
• NKI-RS (Nathan Kline Institute Rockland Sample) is a community-ascertained open lifespan neuroimaging sample, distributed via OpenNeuro.
• Personalized Parkinson Project is a longitudinal Parkinson’s cohort run by Radboudumc and the Donders Institute, pseudonymised with the PEP framework.
• PPMI (Parkinson’s Precision Medicine Initiative) is a longitudinal multisite Parkinson’s biomarker study, with data via LONI IDA.
• ReDLat (Multi-Partner Consortium to Expand Dementia Research in Latin America) studies Alzheimer’s disease and frontotemporal dementia across Latin America, releasing open neuroimaging through BrainLat.
• Rotterdam Study is a Dutch population cohort and biobank with neuroimaging and genomics components.
• TransCelerate is a non-profit consortium of pharmaceutical companies promoting CDISC data standards and cross-sponsor trial infrastructure.
• UK Biobank provides data from 500,000 participants including brain MRI, genomics, and linked NHS records, via the Research Analysis Platform.
• Virtual Brain Twin is the Horizon Europe successor to EPINOV, extending personalised whole-brain modelling through EBRAINS to epilepsy and psychiatric conditions.

Research facilities and platform networks

Physical and compute service providers with institutional identity, from single-institution core platforms to national facility networks. See also Governance for the coordinating networks (INBS, ELIXIR, Euro-BioImaging) that federate these facilities.

National platform networks

• France BioImaging is a French national research infrastructure for cellular biological imaging and the French node of Euro-BioImaging.
• France Génomique is the French national genomics sequencing infrastructure, federating sequencing platforms under INBS.
• France Life Imaging is a French national in vivo imaging infrastructure, with CATI as a neuroimaging data management node.
• Huma-Num is the French national digital humanities infrastructure, operating the DARIAH and CLARIN French nodes.
• IBiSA (Infrastructures en Biologie Santé et Agronomie) labels and funds technological platforms and biological resource centres.
• de.NBI (German Network for Bioinformatics Infrastructure) is the German national bioinformatics infrastructure and the ELIXIR German node.
• Health-RI is the Dutch national health data infrastructure, hosting the ELIXIR Dutch node and operating the National Health Data Catalogue.
• IFB (Institut Français de Bioinformatique) is the French national bioinformatics infrastructure and the ELIXIR French node.
• NeurATRIS is the French national translational neuroscience infrastructure and the EATRIS French node.

Core technology platforms

• CATI (Centre d’Acquisition et de Traitement des Images) is a neuroimaging data management node of France Life Imaging, providing multisite MRI quality control.
• CIC Neurosciences is the INSERM-APHP Clinical Investigation Centre for Neurosciences at Pitié-Salpêtrière.
• Spinoza Centre for Neuroimaging is the shared 7T and 3T MRI facility of Netherlands Institute for Neuroscience, Vrije Universiteit Amsterdam, and Amsterdam UMC.